Thank you again for all your ongoing support,. Please keep sharing our story.
It feels like our LA have been on a mission to destabilise Rohan’s care for 3 years now in an attempt to put him in a residential care home. There is a manager in the LA who keeps saying Rohan’s needs are 1:1 care with a floating 2:1, because that is what he would get in a residential home.
Fortunately, all the professionals in Rohan’s care disagree. In response, she has used whatever weapon she has in her arsenal to meet her pre-decided agenda. Our fault is that we love our son and know he would not survive a residential home, so we have stood up to this time and time again, and raised complaints about her behaviour, which is why we now have a target on our backs. This feels like a vendetta.
Every time they introduce us to an agency they have told them we are a “difficult family”. They tried to destabilise the package the first time by not paying the care company for over 6 months. They were hoping the company would serve notice, at which point we think they would have said they couldn’t work in Rohan’s home environment because of “the mother”. They worked here happily for 66 weeks, until they were served notice on an organisational level by CCC, due to unspecified “concerns” destabilising everyone’s care. But that company still holds all of their previous ICB packages. This makes no logical sense to me.
The LA/ICB don’t provide enough care hours, so carers are exhausted at the end of a day without a break or the support they need. If they leave, guess what? Yes, they blame it on the “the mother”. This is a pattern we have observed repeatedly.
We think the LA/ICB wanted to create “concerns” again about me and push Rohan into a home on this occasion; thankfully they underestimated us again. We have evidenced their concerns were false, so now their plan B is to put in a company in who cannot take our current carers and consequently turn Rohan’s and our lives upside down by destabilising his care. How is this in Rohan’s best interests?
Our MP has repeatedly asked for meetings with the CEO regarding this manager and the answer was no. Our councillor asked the Executive Officer for social care and was told they have not had any complaints about this manger. Thankfully I have now met up with a number of families that have the same pattern of complaints with this one manager. Why is this individual so well protected? What are they hiding? Why do we get a different version of events every time they open they communicate?
The funny thing is: two weeks ago they labelled me as “interfering” and they had “concerns” about my involvement in Rohan’s care and care plan. Monday this week, we met with the new company they are proposing. The senior manager confessed that our son’s social worker told her not to worry about the short transition and training since “the family will do the in-depth training”. I rolled around laughing when I told a friend who said, “but you are interfering, and a safeguarding risk. How are you fit to provide training?”.
I couldn’t make this up if I tried. But I am trying to continue to see the humour in this ridiculous situation! Here is our gorgeous Rohan’s infectious smile.x
