You may be wondering how we are getting on. I have spent much of the last year volunteering my time to building relationships and trying to bring about change in the Local Authority (LA) and Integrated Care Board (ICB).With the ICB we have made significant progress. The Executive leadership team (ELT) embraced all we fed [...]
Last week I attended a very well-researched conference1 led by Professor Luke Clements, built on a study conducted by Leeds University, CBF (challenging behaviour foundation) and the Tizard Centre funded by the NHS. They have created a video and written a report called Broken2,3 where, in a poll of 214 families of special-needs children, every [...]
It has been a couple of months since we updated but don’t worry, we haven’t stopped working! We have been coming down from a crazy rollercoaster ride. Where are we now? With the help of our very hard-working County Councillor Lorna Dupré we managed to get meetings with the CEO and Director of Social Care [...]
Our experience in November 2023 with the LA/ICB left me feeling pretty traumatised and exhausted, and I had not long started feeling better. I did a few counselling sessions to look at how I handled the stress of that time, I didn’t want to repeat the experience I gave myself again. Running still wasn’t available [...]
Good news! Things are progressing in the right direction all be it slowly. The LA are starting to do some of what should have happened several months ago. We will share when it is safe to do so. The sad news is, our story is not unique. I have many friends going through the same [...]
