Good news! Things are progressing in the right direction all be it slowly. The LA are starting to do some of what should have happened several months ago. We will share when it is safe to do so. The sad news is, our story is not unique. I have many friends going through the same [...]

We are still sat waiting for the LA/ ICB to decide what next! We have so far spent over £10k in legal fees and I imagine the LA (local Authority)/ ICB (Integrated Care Board) have probably doubled that bill. They have bullied our current agency, we have evidence to prove it through a SAR (Subject [...]

I put a Freedom Of Information request (FOI) into the ICB (Integrated Care Board) and LA (Local Authority) about a month ago, for the legal costs against Rohan from Nov 2023 when Beaumont went into liquidation. I received the FOIs over the last few days, and I think it is important to share these with [...]

We have had a very busy week just riding the wave. We were praying for a miracle last Friday! The LA/ICB had it all sewn up. We thought we would be in Court of Protection or crisis. We had 12 days with our current care provider remaining, a new company coming in, no transition plan [...]

My brother can’t talk yet, but he is so cheerful. I hear him laughing whether he’s in his room learning and playing games, walking around the house or outside, or during mealtimes. Rohan is often laughing at something he’ll never tell us, sometimes it’s at the same jokes that our dad and I make over [...]